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Read more below about real kids with PKS...

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*In the News*

Amber Anderson

DOB: 1-14-94

Pre-Birth Symptoms

none

Post-Birth Symptoms

born c-section

Since Birth Symptoms  (items in Red have been repaired)

	inflamed lungs
	Human Parvo virus
	displaced anus
	diaphramic hernia
	feet turned inward
	typical PKS hair pattern

MaKayla Campbell

DOB: 12-18-01

Pre-Birth Symptoms

33 dilated to 2cm

33 to 39 wks Mom hospitalized, emergency c-section at 39 weeks

During delivery, baby's heart racing,

O2 level low

Post-Birth Symptoms

Wide set eyes

Ears angled weird

Nose just not right

Heart problem (murmur turned

to irregularity)

Since Birth Symptoms  (items in Red have been repaired)

	developmental delays
	dysmorphic features including hypertelorism, Lymphedema, and hypotonia

	walks w/ little support, talking, self feeds finger good
	ITP
	seizures
	uses peripheral vision
	excessive tearing

Phil Colasanti

DOB: 9-7-96

Pre-Birth Symptoms

Mother suffered polyhydramnios

Post-Birth Symptoms

breathing problems

low muscle tone

sparse scalp hair

high forehead

wide space between eyes

hypopigmentation

Since Birth Symptoms  (items in Red have been repaired)

	muscular hypotone (mouth)
	big tongue
	Ventilation Tube inserted in ears
	Cryptorchidism (hidden or obscure testis)
	gap between his jaws
	walks independently, runs
	talks using words/sentences
	tires quickly

Doxiades Fuller

DOB: 9-24-01

Pre-Birth Symptoms

Mother told at 7 months "it was a little tight in there" indicating there was not much room for the baby to grow

Post-Birth Symptoms

premature (29 weeks), extra fingers and toes,

ear low and back

Since Birth Symptoms  (items in Red have been repaired)

	groin hernias, umbilical hernia
	right testicle did not drop
	atrophied corpus callosum & brain stem, enlarged ventricles (brain)
	skin discoloration, typical PKS hair pattern
	mild hearing loss
	high palate, cleft uvula, doesn't talk
	tethered spinal cord
	scoliosis
	high and low muscle tone, unable to sit unassisted
	ankles roll inward, doesn't walk

Simon Peters

DOB: 12-03-04

Pre-Birth Symptoms

short bones

cleft lip

enlarged ventricles in brain

Post-Birth Symptoms

low oxygen levels

low body temp

apnea

Since Birth Symptoms  (items in Red have been repaired)

mild low muscle tone

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