| Vol1:Issue4 |
April 16, 2004 |
|
Hello and Good Wishes to All! We’ve got so much information for you this month, that we’ve added an extra page. The third page contains links that have an enormous amount of information. If you know of any more, please let us know at infantsol@yahoo.com |
|
The Silcock Family – An Inspiration
With all we as special needs parents deal with, endure and enjoy I have found a family that truly inspires. This is the family that started with a young lady and young man (who is a quadriplegic) and the young woman’s dream of adopting orphan children.
What started as a dream is now reality with the Silcock family numbering 27 (Mom, Dad and 25 boys) and growing. The Silcocks adopt boys that no one else wants to adopt. They have adopted from all over the USA and as far away as Russia.
When faced with the dilemmas, challenges and just the day to day activities of caring and raising a special needs child, I now only have to think of the Silcocks and their unshakeable resolve to know that I can get through the next day.
The Silcock Family
Read more about the Silcock Family at:
http://www.allourboys.com/home.htm
|
|
|
|
|||
Send your child’s story to PKS Support. We will publish it in future editions of the newsletter. You can email it to: infantsol@yahoo.com |
|||
|
|
|||
A Grandparent’s Point of View…
I am the grandmother of Jocelyne Silvan, who is now 13 months old. We got a diagnosis when she was only about 6 weeks old, so I guess we were very fortunate for an early diagnosis. They suspected Down's Syndrome because of her facial features and testing came back as PKS. One of the most frustrating things about first learning about her diagnosis was the fact that her Pediatrician at the time didn't have a clue what it was. The doctor just checked medical information on the internet and gave us a very gloomy prognosis. Well, Grandma here doesn't listen to anyone without reading information herself. I came home and was on the internet for hours and hours. I met some of the most wonderful and supportive people I could have imagined and learned, lo and behold, life is what you make out it and you get what you give. Another problem I had was her parents were both in denial and felt she could be cured by God. We discussed this many times and her Mom finally understands that God gave her this wonderful gift and there is nothing to cure. She is a very special child and we only want for her what she can do. Her Geneticist referred us to one of the most wonderful Pediatricians we could ever have asked for. She had a brother with Down's Syndrome so realizes the frustration, anxiety and gift of a special needs child. Josie has been in early intervention from a very young age and now goes to a school for Special Needs children where she gets P.T, O.T and S.T. She is making big strides and I can’t explain the joy and love she has brought to all of us that she touches. The most important thing is the support of family, friends, especially our PKS friends! -- Pam Tokarz |
|||
|
|
|
||
|
|
,
cont'd| Vol1:Issue4 |
April 16, 2004 |
BIG NEWSThere is a book/booklet in the works for parents whose children have been diagnosed with PKS. It will have information from our Polls taken at the online group, statistics from the Questionnaire, actual stories of PKS kids and useful information in navigating the care of their PKS kids. If you have any information you’d like to share or would like your child’s story in the book, please send us an email at: Or
|
|
Sage and Lemon Balm shown to help in memory and behavior problems of Alzheimer’s patients
In a News article [click here] dated March 5, 2004, it is reported that extracts of Sage and Lemon Balm shows great promise in improving memory and mood.
This is significant to our PKS kids. As with the Omega 3 fatty acids, this finding could help our kids regain/gain use of some of their mental abilities. You can read the research article here: abstract
Below are excerpts from Botanical.com about the herbs Sage and Lemon Balm:
Sage:
Stimulant, as tringent, tonic and carminative. Has been used in dyspepsia, but is now mostly employed as a condiment. In the United States, where it is still an official medicine, it is in some repute, especially in the form of an infusion, the principal and most valued application of which is as a wash for the cure of affections of the mouth and as a gargle in inflamed sore throat, being excellent for relaxed throat and tonsils, and also for ulcerated throat. The gargle is useful for bleeding gums and to prevent an excessive flow of saliva.
Sage Tea or infusion of Sage is a valuable agent in the delirium of fevers and in the nervous excitement frequently accompanying brain and nervous diseases and has considerable reputation as a remedy, given in small and oft-repeated doses. It is highly serviceable as a stimulant tonic in debility of the stomach and nervous system and weakness of digestion generally. Read more here…
Lemon Balm:
Carminative, diaphoretic and febrifuge. It induces a mild perspiration and makes a pleasant and cooling tea for feverish patients in cases of catarrh and influenza. To make the tea, pour 1 pint of boiling water upon 1 oz. of herb, infuse 15 minutes, allow to cool, then strain and drink freely. If sugar and a little lemon peel or juice be added it makes a refreshing summer drink. Read more here…
|
|
|
||
|
As long as one keeps searching, the answers come. - Joan Baez, Folk singer |
|
|
|
|
||
|
Say hello to Amber! She is 10 years old and a big fan of Power Puff Girls and Tweety. Amber was diagnosed with PKS at 18 months. Prior to her diagnosis, she had been admitted to the hospital for pneumonia and other problems. She has had several surgeries including one to repair a diaphramic hernia. Amber attends school, loves the water and enjoys being with her friends and family. She receives her therapies through the school. You can read more about Amber at her website: http://ambersitetx.tripod.com/index.htm
|
,
cont'd| Vol1:Issue4 |
April 16, 2004 |
